Entries in A Boy in Wonderland (158)

Saturday
Apr272013

Love & Asperger's: The Task

Today, we have the honor of having another guest blogger, Brandy Nightingale. Brandy has Asperger’s Syndrome, and what follows is an amazing look inside her world. Brandy’s blog site can be found here.

“Your task is not to seek for love,

but merely to seek and find all the

barriers within yourself

that you have built against it."

~Rumi

I read this quote shortly after leaving a failed five-year-long relationship and thirty years of being clueless as to what a proper “relationship” was to consist of. I’d read all the popular books on the subject: Men are from Mars, Women Are From Venus & Mars and Venus on a Date by John Gray, PhD; Relationship Strategies: The E&P Attraction by John G. Kappas, PhD; Soul Mates and Twin Flames by Elizabeth Clare Prophet; Don’t Sweat the Small Stuff in Love by Richard Carlson and Kristine Carlson; The Mastery of Love by Don Miguel Ruiz; The Path to Love by Deepak Chopra . . . the list seems never-ending.  Even as a teen, I’d read countless magazine articles on “how to flirt,” “how to attract your soul mate,” and “how to make him fall for you.”  Yet one day, while in a hotel room across the country from my love of five years, I realized we were in a pickle. I couldn’t understand why with all my book knowledge, with all the research I’d done on how to love, we simply couldn’t make it work.

I also had no idea I had been living thirty years with a soon to be diagnosed “disorder” called Asperger’s syndrome.

Having no idea I had a neurological difference, much of my life was spent trying hard to “fit in” with everyone else, to mold to those around me, to not stand out, but to be accepted—to the detriment of my own truth. The truth was, my truth at least, was that I was interested in science, not underage drinking. I was interested in walking in nature, not walking in designer shoes. I was interested in learning world theology, not learning the latest gossip. And I realized, at the age of thirty, my one and only adult relationship was failing, hard, because I had lost myself trying to fit his mold.

“Why do you always read non-fiction books? Aren’t you interested in fiction? Novels?”

“Why do you act so weird when we’re around my friends? Get over yourself.”

“I wish you’d wear skirts. Why do you always wear the same thing?”

He’d ask these questions and rather than responding with a proud, “Because this is who I am” or simply questioning the very foundation of our relationship, I would attempt to impress him with a sudden interest in fiction literature, a purchase of vintage skirts, and my brief four-hour trial of donning thong underwear (which, I admit, quickly ended up in the rubbish bin in my office restroom after hours of torture). And the depression soon followed

Am I enough? Of course not. Everyone wants love. Everyone wants to be held, and have someone to enjoy a dinner with, or breakfast, a laugh, and frequent trips to the Santa Barbara Zoo (well, maybe that last one is a tad more of a personal preference). I need to make myself be enough.

I moved into a place of my own, facing the ocean, with my dog, and though I admittedly had times of extreme loneliness and experienced the eating of an overabundance of soothing pumpkin pies, I realized I was enough. I liked my books, my random intensive research on the internet, my solo breakfasts at Coogie’s in Malibu, my nature hikes with my Great Dane, Audrey, and when I went home at night, no one was critiquing my reading of the Bhagavad Gita, The Power of Now by Eckhart Tolle, or biographies on Tesla. I realized for the first time, I liked me. My quirks made me interesting. My simplicity made my life affordable. My interests made me abundantly rich. Heck, I’d ‘follow’ me on Twitter!

And shortly thereafter, I met my husband. Two “wholes” sitting over a giant cheese and basil pizza at D’Amores in Malibu, sharing the selves that we both accepted. Our selves.

I’m not saying relationships are easy. I can tell you honestly, I’ve never had such a struggle. And we’re still figuring out if this relationship is what’s best for both of us, with our quirks and needs and wants and dreams. The reason for the struggle is not that either of us are tough to live with and not that we fight or become abusive. It is that I so easily fall into losing myself, time after time. I become small, not enough, compare myself to others. That is my lifelong work. Maybe it will always be, maybe the struggle is my way of finding the barriers within myself, which I will overcome. It would be easier to be alone, yes. I’m the queen of happy isolation. But what a gift to meet someone who loves themselves enough to allow you to discover your walls, to fall in love each day with who you are and who you’ve become. And who would have thought meeting me and accepting me as I had was the first critical step toward finding a true, loving relationship?

I’m honored to be a guest blogger with fellow Aspie Arman Khodaei. I first discovered him when someone sent me a link on the documentary he is featured in titled AUTISM IN LOVE. This subject, obviously, is near and dear to my heart and much needed, so I’ve been spreading the word as much as possible for others who are just as passionate or even just curious, to support this project. Following is a link to the Kickstarter campaign for the film. I invite you to join in and support it however possible, even by just sharing the link with friends, teachers, neighbors, and family members.

Brandy Nightingale was diagnosed with Asperger’s Syndrome, an autism spectrum disorder, in 2010 at the age of thirty-five. An entrepreneur, visual effects coordinator on feature films, retired stand-up comedian, and author of the upcoming Everything’s Hunky Dory: A Memoir, she can be found on Facebook, and her blog can be found here.

Friday
Apr262013

The Big Bang Theory & Asperger's Syndrome

Today's YouTube video focuses on me discussing The Big Bang Theory which is one of my favorite shows ever made. I can really relate to the characters and feel Sheldon for sure is an Aspie, and I believe all the characters except Penny display some autistic characteristics. Please watch my video for my further thoughts on this amazing show and perhaps best ever portrayal of Asperger's Syndrome.

Thursday
Apr252013

So, That Other Documentary I am In

One thing I don't talk about is the fact that Autism in Love is not the ony documentary I am in. A couple years back, I did an interview on sensory issues related to autism. I am not sure on the status of that documentary, or if they used my interview. Then, I also did an interview for a documentary about the upcoming changes on the DSM-V. I think I said a lot of good things for that interview, but that documentary is still being edited together.

Then, there is a fourth documentary I have been a part of. It is called Beautiful, and it documents a series of workshops that took place in Claremont and Santa Monica. These workshops were done in partnership with my program Empower Autism Now, Autism Specturm Integrated Services (Dance into Unity), PermaDirty Project Space, and Westside School of Ballet.

The workshop was created to integrate people on the autism spectrum with people not on the autism spectrum. Each workshop would begin with a discussion about some deep topic. I felt that we were really getting at the core of what it meant to be human. Then, the workshop would end with some sort of excercise about movement and later on connection. 

During this process, we started out in Claremont, but the real workshops began this month in April when we made our way out to Santa Monica where new people were added to the cast. The workshops ended just a few days ago. And, tomorrow and Saturday is the premiere of the documentary. The premiere will be taking place at Miles Playhouse in Santa Monica, and you can RSVP here.

I look forward to seeing everyone at the premiere!

Tuesday
Apr232013

What Has Autism in Love Been Like So Far: My Video Response

Please support the Kickstarter campaign for Autism in Love. With all your support, we can reach this goal and make this film a reality. 

Monday
Apr222013

Love, Dating, and Romantic Relationships: My Journey so far with Autism in Love

For the past few months, I have been a subject in a documentary called Autism in Love. This means, my story of searching for true love has been followed by a team of filmmakers. There is still a few months left of filming (hopefully). So, today, I want to discuss those experiences and also to mention the Kickstarter campaign the film team has going on. If they don’t reach their goal, this documentary will not be able to be completed. So, please share this article, tweet it, post it on Facebook and Linked In, tell your friends about it, and even write a blog about it, if you have a blog. Or, you can even have me write a guest blog. But, ultimately, we all have to work as a team if we are to see this documentary come to light.

With that said, this documentary has been an amazing journey and also very difficult at the same time. I already wrote a brief article about this on Autisable.com, but this time, I want to expand deeper and allow you readers to see what this process has really been like.

The toughest thing about being in this documentary has been talking about what dating is like for me and my thoughts on love. Also, talking about dating experiences that are being filmed is quite difficult. The challenge about this is that when I am writing a blog or posting to YouTube, I don’t see anyone. I am less aware of having an audience and this allows me to be more open and free. But, when I am being filmed, I can see the filmmakers watching me as I answer their questions. Also, some of their questions are tough and sometimes very intimate at times, but I really want to allow the filmmakers into my thought process and capture what is going on inside of me.

The next hardest thing is going on dates and having those filmed. Sometimes, I think I might hold myself a back a little bit because I am aware that I am being filmed. I am afraid to maybe touch someone’s hand or convey my feelings because of my worries of what if this doesn’t work out? First, I have to live with the embarrassment of having that captured on film, and second, because it is being filmed, I worry that might lead the other person to believe that I like them a lot. And, in the end, I don’t want to hurt anyone’s feelings. But, I realize that for this documentary to truly be extraordinary, I do have to take risks and touch someone’s hand if I like them, or if we go on enough dates, even kiss them….Yikes!

Also, there is the weight of not only having the pressure of having to try harder than ever before to find that special someone, I also have the additional barrier of the fact that our interactions will be filmed. Some people don’t like being filmed. And, how do you tell a girl that you just met that you are being filmed in a documentary about love, dating, and relationships? Can you say awkward?

Each time I meet someone that I like a lot, I worry that she won’t want anything to do with me because of the fact I am in this documentary and that means she has to expose herself and risk herself in front of camera. I have tried to put myself in the girl’s shoes, and I can imagine that being a scary experience for some. So, it is a huge weight having to explain to the girl about this whole documentary business. Actually, I usually just let the director explain what’s going on, but I still worry that maybe things won’t work out once she finds out the documentary is about.

So, in retrospect, what I am getting at is that dating is already hard for me. I am often scared to go up and talk to a girl and ask her out. Heck, I never ever ask for a phone number and instead ask if I can add them on Facebook. I am a coward when it comes to dating, and yet, with this documentary, I now have an extra layer of hardness. And, then, there is another layer of difficulty in the fact that there is only a limited window that this documentary is being shot. Once time’s up, that’s it and no more filming. So, I have to be very proactive and actually try to meet people and ask them out. And, well, I am finding the process challenging.

But, I have found some success.

I have gone on a few dates that have been filmed. Interestingly enough, it has been the girl that made the move every time. I think I kind of like being chased, and it also helps me see from a women’s perspective because often they are the one being chased. An interesting thing I discovered is that when you are the one being chased, you are limited by those who show an interest in you. If they don’t show an interest in you, then they are off the table.

I have found throughout most of my life that if a girl doesn’t show an interest in me then I assume she doesn’t want anything to do with me. Now, I know some girls mask their feelings. Heck, I mask my feelings. I bet there are a lot of girls that I like that don’t know I like them because I am so afraid of facing that rejection. And, I realize this has limited my dating experiences because I can only date the girls that show an interest in me.

So, what I have realized is that from my experiences is that guys on the autism spectrum most likely are more like girls when it comes to dating. They are not the one to make the first move or to show an interest in the opposite gender. For men this is super problematic because in society, men are expected to make the first move, and well, most or all moves after that for that matter.

But, I am digressing. What is important is that I am going on dates and so far the film team has captured some amazing stuff. And, despite all the challenges I have faced, it has been well worth it. The reason I have decided to be a part of this documentary is because I want people to see the challenges that people on the autism spectrum face. I even have the benefit of being very attractive (according to what many people told me), and yet, this is a huge challenge to me. I have had quite a few people tell me that they think I must have a lot of girls all over me, interested in me. And, you know what, I shake my head no. If there are a lot of girls interested in me, I’m not aware of it.

But, I did not just join this documentary because I wanted to show the challenges those of us on the autism spectrum faced. I also joined it because I want to inspire others to find true love because I believe I can find that special someone. I believe 100% despite the obstacles that I am facing that I will find her, and that many significant and special moments will be captured. That is why I have agreed to be in this film.

So, again, I ask, please support Autism in Love. Please donate to the Kickstarter campaign, if you can. Please let others know about the campaign. The more people that know about the campaign, the more likely the goal of $100,000 will be reached. It will take all of us to make this a reality. So, please do whatever you can to help so that I can share some amazing and beautiful stories with you and have those amazing moments captured on film.

Thank you for all your support. May each and every one of you have a most awesome day of awesomeness.